Planning for Vulnerabilities with Self Advocates

Why is there a photograph of Woodlands Institution in a posting about planning for vulnerabilities with self advocates?  Because, once upon a time, our society thought that the best way to keep people safe was to look them away.  Ken Scott, in his historical research article, The BC Public Hospital for the Insane, 1872-1902, writes of the earliest institution being built in 1878 and in 1894, only 16 years later, with a total of 117 patients there was already a royal commission into abuses: . . . to investigate questionable practices . . . when a male patient died after … Continue reading Planning for Vulnerabilities with Self Advocates

CLBC’s Community Safeguards Projects and 101 Friends

Under Jule Hopkins Community Living B.C. (C.L.B.C.) took on a brave agenda of creating documents related to how people can plan for vulnerability and stay safer in community, which had many different parts.  I continue to think this was really exemplary work that involved many self advocates and families, as well as brought together different groups. Jule was an early believer in our work and we used methods from what is now called CBPR (Community Based Participatory Research) and, together, learned a great deal about how inclusive groups and inclusive research works, and got to work with colleagues and agencies … Continue reading CLBC’s Community Safeguards Projects and 101 Friends

Dissertation: What Works?

With my dissertation supervisors, Ginny Belden-Charles from the Taos Institute, and Jasmina Sermijn, from VUB. My dissertation, What Works? Stories of Successful Leadership in the lives, groups and communities of people with intellectual disabilities, can be downloaded here: Johannes-WhatWorksDiss-USALetterWiCover2UploadEmail You can watch the dissertation defence here. You can watch the dissertation being awarded here. One of the updates for my self advocate collaborators is here. The final update presentation for the research was given at TASH in Atlanta, in Dec. 2017 and is here.   Sometime in 2018 there will be an online discussion of some of the dissertation that will … Continue reading Dissertation: What Works?