CLBC’s Community Safeguards Projects and 101 Friends

Under Jule Hopkins Community Living B.C. (C.L.B.C.) took on a brave agenda of creating documents related to how people can plan for vulnerability and stay safer in community, which had many different parts.  I continue to think this was really exemplary work that involved many self advocates and families, as well as brought together different groups. Jule was an early believer in our work and we used methods from what is now called CBPR (Community Based Participatory Research) and, together, learned a great deal about how inclusive groups and inclusive research works, and got to work with colleagues and agencies … Continue reading CLBC’s Community Safeguards Projects and 101 Friends

Dissertation: What Works?

With my dissertation supervisors, Ginny Belden-Charles from the Taos Institute, and Jasmina Sermijn, from VUB. My dissertation, What Works? Stories of Successful Leadership in the lives, groups and communities of people with intellectual disabilities, can be downloaded here: Johannes-WhatWorksDiss-USALetterWiCover2UploadEmail You can watch the dissertation defence here. You can watch the dissertation being awarded here. One of the updates for my self advocate collaborators is here. The final update presentation for the research was given at TASH in Atlanta, in Dec. 2017 and is here.   Sometime in 2018 there will be an online discussion of some of the dissertation that will … Continue reading Dissertation: What Works?

Rhizomatic Learning: Cheating as Learning #rhizo14

Interesting to try to keep up with all the posts about this Week One idea of cheating as learning in this class on rhizomatic learning.  So many perspectives.  I related to one about the general discomfort around the idea of cheating, and then another person said why not call it “changing the rules” – but as I think it all through, at least from the perspective I’m taking, I think I like the idea of cheating as a conversation starter. I’ve been fascinated by Gilles Deleuze and Félix Guattari ideas about the “rhizomatic,” concepts they created to oppose what they called … Continue reading Rhizomatic Learning: Cheating as Learning #rhizo14

The Navigators’ Project

Debriefing of a Spectrum Society project in which we looked at the possibilities for fostering more autonomy and self determination by providing supporters who took on a new role of “Navigators” in the lives of people with disabilities… each drawing is about 4 ft x 6 ft and took about 2 hours in real time, recording as people talked. detail detail Continue reading The Navigators’ Project