Equanimity & Vulnerabilities – big words to use in Person Centred Planning

Barb Goode, our local plain language expert, says that the point of plain language is not to always use small easy words, but also to expect to learn bigger words by having them explained.  Equanimity is a big word.  Here is what the dictionary says about it: e·qua·nim·i·ty: mental calmness, composure, and evenness of temper, especially in a difficult situation. Equanimity is a hallmark of our supports to folks with disabilities and people who are marginalised.  Sometimes people in our field say, “Everyone assumes I am patient, but I’m not.”  I know the feeling – I was once in a … Continue reading Equanimity & Vulnerabilities – big words to use in Person Centred Planning

#powerofdisability review of Al Etmanski’s new book

“I discovered that people with disabilities have been major players throughout history. If you were to take away their contributions, you wouldn’t recognize the world.” I can’t remember the last time I read a book so quickly.  I’ve heard of people “devouring” books and always wondered about that terminology but now I know how that feels.  I meant to read a few pages – it’s a snowday here, the second dump in a couple of weeks and while the first was much worse, everyone is still tender from black ice and fender-benders and the college is closed, my students are … Continue reading #powerofdisability review of Al Etmanski’s new book

CLBC’s Community Safeguards Projects and 101 Friends

Under Jule Hopkins Community Living B.C. (C.L.B.C.) took on a brave agenda of creating documents related to how people can plan for vulnerability and stay safer in community, which had many different parts.  I continue to think this was really exemplary work that involved many self advocates and families, as well as brought together different groups. Jule was an early believer in our work and we used methods from what is now called CBPR (Community Based Participatory Research) and, together, learned a great deal about how inclusive groups and inclusive research works, and got to work with colleagues and agencies … Continue reading CLBC’s Community Safeguards Projects and 101 Friends

ARTbrain – a new project

Now that this has been formally announced, we can share some great news!  Our new ARTbrain project combines a few ideas that Liz Etmanski, Susan Powell and I have been talking about for a while.  We were grateful to receive some funding from the Ministry of Tourism, Arts and Culture to explore these ideas over the next eight months.  Our proposal read, Access to fine arts and humanities education has been almost impossible for adults with intellectual and developmental disabilities, and this project will involve them in thinking critically about how art works, making art, works from art history and … Continue reading ARTbrain – a new project

Dissertation: What Works?

With my dissertation supervisors, Ginny Belden-Charles from the Taos Institute, and Jasmina Sermijn, from VUB. My dissertation, What Works? Stories of Successful Leadership in the lives, groups and communities of people with intellectual disabilities, can be downloaded here: Johannes-WhatWorksDiss-USALetterWiCover2UploadEmail You can watch the dissertation defence here. You can watch the dissertation being awarded here. One of the updates for my self advocate collaborators is here. The final update presentation for the research was given at TASH in Atlanta, in Dec. 2017 and is here.   Sometime in 2018 there will be an online discussion of some of the dissertation that will … Continue reading Dissertation: What Works?

Oblique Strategies

I was fascinated to hear about Brian Eno’s Oblique Strategies cards, which I hadn’t known about before.  So then of course I really wanted some… but the first edition ones were about $1,500 and the latest edition seemed to be a while ago and they were pretty much $100++  on eBay. So then I thought to google Oblique Strategies cards pdf and found these DIY cards – not sure who the blog owner is but they’re searchable publicly so… Oh and then I found the free iPad app…. have at ‘er oh differently thinking people… Continue reading Oblique Strategies