Under Jule Hopkins Community Living B.C. (C.L.B.C.) took on a brave agenda of creating documents related to how people can plan for vulnerability and stay safer in community, which had many different parts. I continue to think this was really exemplary work that involved many self advocates and families, as well as brought together different groups. Jule was an early believer in our work and we used methods from what is now called CBPR (Community Based Participatory Research) and, together, learned a great deal about how inclusive groups and inclusive research works, and got to work with colleagues and agencies … Continue reading CLBC’s Community Safeguards Projects and 101 Friends
Now that this has been formally announced, we can share some great news! Our new ARTbrain project combines a few ideas that Liz Etmanski, Susan Powell and I have been talking about for a while. We were grateful to receive some funding from the Ministry of Tourism, Arts and Culture to explore these ideas over the next eight months. Our proposal read, Access to fine arts and humanities education has been almost impossible for adults with intellectual and developmental disabilities, and this project will involve them in thinking critically about how art works, making art, works from art history and … Continue reading ARTbrain – a new project
With my dissertation supervisors, Ginny Belden-Charles from the Taos Institute, and Jasmina Sermijn, from VUB. My dissertation, What Works? Stories of Successful Leadership in the lives, groups and communities of people with intellectual disabilities, can be downloaded here: Johannes-WhatWorksDiss-USALetterWiCover2UploadEmail You can watch the dissertation defence here. You can watch the dissertation being awarded here. One of the updates for my self advocate collaborators is here. The final update presentation for the research was given at TASH in Atlanta, in Dec. 2017 and is here. Sometime in 2018 there will be an online discussion of some of the dissertation that will … Continue reading Dissertation: What Works?