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I had a great time over three days with B.C. People First and more than sixty self advocates talking about what matters to them and letting me listen in. I’m pleased with how this video turned out (at least until Van Morrison’s agents find out I’ve used his song)! to see photos of the whole conference, check out this entry on the B.C. People First blog site.
I was THRILLED to be part of this workshop, in which some old and new friends who are self advocates presented to their peers at the B.C. People First conference. They wanted to get away from powerpoint and liked the idea of a graphic “map” to help them remember where they were in the course of their workshop. After we wrote down all their ideas, I came up with these graphics and they seemed to work well to keep everyone on track. It was a great workshop.
I’m really excited about being the graphic facilitator for the “What About Us?” world cafe that launches the B.C. People First 2012 Conference. Each table will have a “conversational leadership” theme chosen by the board of BCPF, such as “what about us and relationships?” and the world cafe will be facilitated by self advocates from Esatta Cooperative. The theme of the conference is “Nothing About Us Without Us” – “we are making sure that people with labels are involved in ALL decisions that are made about our lives. This takes unity and leadership. This conference is for all people who are labeled to learn and share together.” These little table signs were fun to make once I figured out something that would work – in a program called “type text” which takes lines of text and uses them to draw with. If you look closer you can see the drawings are made up of the words “what about us?” They are printed double so that we can fold them over. At the end of the world cafe I’ll draw as the facilitators “harvest” the ideas that come from each of the tables. I’ll post photos later this weekend! I think putting the little graphics together would actually make a cool poster. I’ve added the inside of the brochure, which I also did the graphics for.
One of the things that’s convincing me about the power of graphic facilitation is the responses from men. Where I come from, they used to call the old farm “Bonanza” and John Wayne was everyone’s ultimate hero. As my friend’s father used to say, whenever we started talking about anything, “There’s altogether too much talking in the world.” Not a place where men spent a lot of time talking about their feelings. And there’s some really good research in the field of disability studies around Dads (and brothers) who often feel really challenged by having to talk about what’s going on for them and their families around their family member with a disability. The kinds of situations they find themselves in – great rooms of Social Workery types wanting to process around a table end up making them feel left out. One of my favourite dads used to show up for meetings with his toolbox. Everyone else had a file folder, and a date book, but he was ready to fix things. Yet if I followed him outside to help paint the steps or nail down a patio floorboard, he had the best ideas of anyone.
So I’ve been really interested in how graphic facilitation lends itself to these folks being able to relate to pictures, when words are difficult. Often they start to talk, to shape what the picture looks like, and clarify what they think and feel as it becomes more concrete on the page. I’ve noticed their wives and children stop and stare in amazement. In one of our recent sessions with families it led to a great conversation and afterwards the wife told me that in more than a decade he’d never been able to say the things that he’d said. Even more telling, the fellow, who’d walked in and told me he was just there to observe and then spent the first hour looking at his watch, came up as he left to say he was looking forward to the next meeting. ”I thought this was just going to be another one of those endless meetings – talk talk talk – but I feel like I know what I have to do now.”
So many of our new methods of communication together are about having what’s been nicely called “conversations that matter” – in small groups, with lots of opportunities for interaction, with an assumption that “the answer is in the room” rather than about to be delivered from the podium. Graphic facilitation adds to this possibility so that folks who haven’t talked much before can speak more easily about that they can now see in more concrete ways. These are a few not very good photos (must remember to bring good camera) of a PATH that Shelley Nessman and I did recently where the focal person spoke more than I’ve ever heard him speak, about what matters to him. I went into it thinking that it wasn’t going to be a method that worked for him at all, and came out having learned lots! I’ve edited out all the names for privacy.
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To learn more about our research, training and development projects check out www.101friends.ca or www.spectrumsociety.org or www.spectrumpress.com or leave a comment below. PATH is a person centred planning process created by the folks at www.inclusion.com and Shelley and I will be doing a week long training, tentatively in August, that will be announced in the 101 friends newsletter.
I started thinking I’d make a slideshow of some of the new graphics I’ve been having fun with, and then started adding more… so this was going to be a kind of overview of the last few months, but then i decided to put in some older things as well. I got introduced to the idea of graphic facilitation years ago when I first was introduced to People First and used to travel with Arnold Bennington to the National Meetings. David Hasbury did these amazing drawings of their conversations, and covered the walls of the hotel board-rooms – I’d never seen anything like it. Arnold and I decided that we should try something like that at the next BC People First Conference, so I drew while people talked, for 10 hours. It was so much fun.
Later, when I worked for a bit with the Vela Microboard Association, Linda Perry introduced me to PATHs and then I went on to study with some other people. My background, prior to supports for folks with disabilities, was in fine arts and I loved the idea of combining my two avocations. I happily did PATHs for years, and then started illustrating books. But I’ve always admired the work of people like David, and more recently Avril Orloff, who has been the graphic facilitator for meetings I’ve been part of leading, and wondered how they do this meta-listening thing…
So as a Christmas gift to myself, I signed up for Avril’s course, The Artful Visual Facilitator - and decided to actually give myself a couple of days of learning around what I’ve been doing by the seat of my pants. It was an amazing couple of days. Sam Bradd, one of our co-students, blogged about it brilliantly here and now Sam is available as a graphic facilitator. If you are interested and can spare a couple of days for Arvil’s course and wonder if it will be worth it, sign up
the next one is in December 2012… Actually I’d jump at taking any of courses with the Masterful Facilitation people and will when I’m done the studies I’m involved in now. Graphic facilitation has a few different meanings, but the one that I took away from Avril’s class was that it is the use of graphics to make things easier, to “facilitate” – from “facile,” french for “to render easy.”
There is some great information on how graphic facilitation is being used, but the ways I’ve been liking to use it are to involve people in kinds of democratic / leaderly processes. Essentially, graphics engage another part of our brains and allow us to think and rethink, but also to clarify what we aspire to. I was particularly delighted by how much difference it made when I did a recent weekend planning retreat for B.C. People First – when we started up the next day people had spent the evening before and the morning going over the drawings from the day before and had a whole different sense of where they wanted to go. The next day was facilitated by Fred Forde, talking about the history of people with disabilities, a fascinating topic in a room full of leaders with disabilities…
So I thought I’d post some of the things I’ve been working on. I’m not quite sure where it’s all going yet, but last year’s objective was to look at at least one art work a day, which was lovely, and so far this year I’ve made art every day – which has been great too. I’m doing about eight days of graphic facilitation over the next months. Eek
It’s interesting when the schedule of what’s going on brings two events together and there’s a serendipitous connection of ideas that happens only because one doesn’t want to miss something that someone that one doesn’t know has scheduled for a certain day, without any sense of one’s own life. Last week I went to a Michael Kendrick lecture about the ideas of “Quality” and “Innovation” in our field of supporting people with disabilities to be part of their communities: what are we really talking about when we bandy these terms around? That evening there was a lecture on “Modern Buddhism” by Buddhist nun Gen-la Kelsang Dekyong, the General Spiritual Director of the New Kadampa Tradition which I also didn’t want to miss.
There were some fascinating resonances. We can think of Buddhist teachings as science, said Gen-la Kelsang Dekyong. What is science? It is the action of attending to reproducible experiments – we can prove that something will happen each time we do it, no matter when, no matter where, no matter with whom. For example, if you put sugar into your coffee it will be sweeter. More sugar = more sweet. The very charming Buddhist nun is a great story-teller: “We don’t say ‘Oh, watch this – I put sugar into my coffee and it got sweeter – I wonder what will happen when you put sugar into your coffee?” or “I’ve been putting sugar into coffee and making it sweeter, I wonder what might happen if I put it into my tea?” We can rely on our experience of sugar dissolving into liquid to allow us to predict what will happen wherever we go, whomever we are with, whenever we try it.
That morning Dr. Kendrick said something like, “One of the things we know from experience all over the world, in many different situations, is that flexibility works better for people – it allows changing needs to be supported and changing goals to be priorised, and yet almost all models of support for people with disabilities depend on fixed staff schedules, fixed budgets based on a snapshot of needs, fixed program sites and fixed assumptions based on an annual plan. In between annual plans we assume everything will be the same. If you want a change it might, or might not be possible, to make a change at your annual plan – depending on how attached the agency is to the building, the staff schedule, and the possibility of flexibility” (he said it much better, but that’s the gist).
Gen-la Kelsang Dekyong’s talk was about the Medicine Buddha and she said something like, “The ‘medicine’ isn’t in the teachings of Buddha,” she said, “it is in putting those teachings into our lives – it is in taking the medicine, just like we take medicine out of a bottle and take it; it doesn’t help us in the bottle – we can take into our lives the two great themes of Buddhism which are compassion and wisdom, these two foundational ideas which we know, just like we know sugar in coffee makes it sweeter, will improve our lives and the lives of those around us. If we have compassion for ourselves, compassion for others – even if they are different from ourselves, compassion for the world – things will get better. We know this. We can be kind and peaceful and good to each other and all things will improve.” Again, she said this much better and I’m giving the gist of what I heard.
A “right action” that we know works, was moving people out of institutions and into homes where they have access to others who can keep them safe and hopefully enter into relationships in which both parties are strengthened and enriched by the gifts of the other. My friend with Down’s syndrome is a great navigator and introducer. I have trouble finding my way and I often feel quite shy in new situations: he gets us there on time (though he can’t tell time), finds a parking spot (that he remembers from a previous visit years ago) and introduces me to everyone in ways I would never think of. He’s also a visionary chef, but he needs me to read, figure out what we need to make the dish, and work the stove. When it is all done, he is a great server and host. If he thought I was in trouble, if, for example, I showed up with a black eye, he’d want to know what happened and he’d make sure I was okay, and vice versa. A thing I think about even more these days is that if we were talking and he had the sense that I aspired to something I wasn’t sure I had the capacity to do, he’d encourage me to share my dream and he’d help me figure out how. We are both safer, enriched, more capable and have more capacity to do good things because we are both in community. Anywhere that people have authentic, good relationships with family and friends this is true. It is another scientifically proven fact.
I was telling a friend that when our daughter, who has autism, graduated and aspired to a “Princess dress” including sparkly slippers and a tiara, we didn’t know what to do. I was ineffectual. Where do tiaras come from? Do people really wear those kinds of dresses? What I knew, that a nice simple dress which might be wearable to other occasions over the next years would be sensible, didn’t matter a fig. And suddenly other people jumped in – moms and daughters and co-graduates and friends – they took her for lunch, they looked at magazines about what to wear for grad together, they shopped, they compared tiaras, they wondered where to find earrings that matched, they made a budget, they practiced wearing high heels. It was as if there was a great circle of people around us who had been waiting for a signal and the signal was my ineptitude. My friend said, “It’s always been an axiom of community living that if we want to connect people we need to stop knowing everything and create conditions under which people are needed.” So that would seem also to be a scientifically proven fact in our field. And, ever since, I have wondered who I have excluded from our lives by my own proficiency (and the pretense of proficiency – those moments when one feels the need to move forward in a kind of expert way, but not really knowing the answers – who might have stepped forward with better answers if I’d just stood still for a moment and looked puzzled and inept?).
So there are a few things we know in the same way we know sugar makes tea sweet. But we need to put the sugar in the tea, not just talk about it, not just have it be part of the choices, but actually spoon it in and stir things up. In the same way, the idea of “flexibility” is not what’s needed in our field, but the ingesting of the idea, the taking of the “medicine” so that flexibility – which is essentially the authentic asking of the question “what do you want?” of someone with a disability, and respecting their ability to make and communicate choices, and listening with good intention (as Buddhists would say) out of right relationship (I will be trustworthy and honorable in all my dealings) and then embarking on “right action” without fear.
Or, as Buddhists say in their constant prayer, including those with disabilities in this intention: “May all beings have happiness and the causes of happiness, /. . . / May all come to peace without too much attachment and too much aversion, / And live believing in the equality of all beings.” Buddhist or not, these are the kinds of ideas out of which the idea of a non-profit service grew from the idea of “charity.” At some point this intention turned into the assumption that what was needed were services, and that those who had begun with the idea of doing “good works” might be the best placed and positioned to provide services.
It is interesting just to play a bit with these words – what happens if we change “services” to “good works,” or to “education,” or to “helping you organize the supports you need in your life” (instead of assuming we are the supports people need in their lives). What happens if we think really big and turn “services” into “compassionate response.” What happens if we think really small and not about what someone needs for the next year, but what do they need right now, in this moment. What happens if we rethink our very intentions and question the ways in which what we do has derived from medicalised models and educational systems? If we stop sentencing people to lifetimes of hospital-like responses and an endless cycle of classroom-type assumptions?
Our evening with Gen-la Kelsang Dekyong began with a brief meditation in which she asked us to be present and then showed us how (science!) by leading us in a very simple meditation – breathing in white light and sending it to our hearts and breathing out black smoke and letting go of our need for attachment (control). Within a very few minutes we could listen in a whole new way. We were present. What happens if we begin our meetings for and about and with people with disabilities by spending a few minutes focusing on listening, instead of shuffling our papers and priorising our endless lists of what matters most (to that person? To the system? To the funder? To the program evaluator?) and playing triage with someone’s life?
So there are some things which we “know” as reproducible “scientific” truths in all of this – sugar makes coffee sweeter, we can listen better, and flexibility works better for people than being constrained, medicine isn’t in the bottles or the pages or the hearing, it is in the ingesting and doing, ineptness creates conditions for community, good friends can help each other.
You can read more about Dr. Kendrick’s work here, under “publications.” You can read more about the Tilopa Buddhist Centre, Gen-la Kelsang Dekyong and other teachers, and the book Modern Buddhism: The Path of Wisdom and Compassion by Geshe Kelsang Gyatso, here. The book is available for sale but the author believes the information is so important that he wants it to be available as a gift to everyone, so there are links leading to free download sites where you can get it as an e-book.
I really enjoy reading Nat’s blog – it’s not just that I quite like her from when she worked with us a few years ago (and was such a gifted person to have on the team) but I like this kind alternative take on Martha Stewart who, if you know me, you’ll know I adore. I envy the carefulness of her approach to home-making and the documentation of the domestic and how there’s this dance between her very busy Facebook documented life and this focused attention on what’s carefully chosen to be around her. And right now she’s having a contest – you can win a lovely framed print of real actual photo-photos not digital but actual processed film printed and enlarged and framed. Check out her blog